We invited members of our community to share their experiences and perspectives of aged care services. Disclaimer: These stories have not been independently verified. They do not necessarily represent the opinion of Aged Care Reform Now and are shared for information purposes only.
This is the “pointy end” where interaction with community ends for many … not only for people living with dementia but for many people living with disability. This is where people risk losing their human rights when entering permanent residential care, i.e. institutionalisation.
It’s all about inadequate housing options and interruptions of ongoing interactions with the wider community.
Some of V*******’s co-residents are not from this region. Many don’t get visitors, ever.
For V******* though, this is her “chosen country”, the community where she’s been living for 17 years, though not where she was born. Despite being a “gypsy” for decades this is where she chose to live and where she expected to end her days
Why is it so difficult to organize transport as a person’s needs change? Because it’s all about who pays for it, under which program..
I now can’t take V******* out because there’s not a second person to support me for transfers in/out of the wheelchair/car (WorkCover for staff doesn’t apply to the carpark).
To get residents out anywhere, e.g. to our local dementia choir, would mean that the RACF (Residential Aged Care Facility) would have to sub-contract to a Community/Disability transport group…and pay for it. It is so damned hard.
Council/CHSP (Commonwealth Home Support Programme) transport services are not available to people in residential care. It’s considered “double-dipping”.
This is how sequestration, isolation and “detention” actually work in RACFs. I literally can’t take V******* out to any community events, nor even for a drive or picnic.
This drives me near-insane.
I couldn’t get her to recent local music events. She’s rearing to go out! This is NOT FAIR.
Do you need to lodge a complaint? We have information on which government agency to contact, and how to explore legal support here: https://agedcarereformnow.com.au/resolving-complaints/where-to-make-an-aged-care-complaint/
Do you need support? OPAN provides free services to support older people and their representatives address issues related to Commonwealth-funded aged care services and informs people of their rights and responsibilities: 1800 700 600 or opan.com.au